The Rose F. Kennedy University Center for Excellence in Developmental Disabilities
The primary mission of the Rose F. Kennedy UCEDD is to improve the quality of life of persons with developmental disabilities and their families. Specifically, this involves four major functions.
- To serve national, regionally, and locally as a model and an innovative developmental disabilities service agency functioning within an ethnically diverse, largely poor, distressed and needy community.
- To receive input from consumers and families in order to create, implement, and evaluate consumer-oriented and professionally valid family-oriented strategies, making it possible to; deal with a needy and underserved population, promote inclusive, person-centered services and enhance access to care in the community.
- To both work within an academic medical centers and as a service "center without walls," providing extensive interdisciplinary training that is responsive to local, state and national priorities, including the training of future leaders and other professionals, as well as individuals with disabilities, especially those from minority-group backgrounds.
- To support other agencies in the local region through direct technical assistance, and nationally through enhanced program development supported by effective demonstration, and basic or applied research.
We carry out this mission through:
- Delivery of exemplary direct services to persons with intellectual and developmental disabilities (ID/DD) and their families;
- Conducting interdisciplinary training programs for consumers, family members, and professionals so they can, lead, develop, and provide these services;
- Helping agencies organize and initiate their own needed community-based services for clients with ID/DD of all ages;
- Creating and operating model demonstration projects which can help other agencies learn how to best ensure the independence, self-sufficiency, productivity and community integration of persons with ID/DD;
- Researching and evaluating what works best and disseminating these findings to professionals, researchers and policy makers, locally, regionally, and nationally, to further improve services; and
- Promoting inclusion of children and adults with disabilities in the full range of community activities.
We plan to use the knowledge derived from these studies to improve services and promote constructive change in specialized and generic institutions which serve this population. The primary purposes of our investigations are to:
- Identify major issues related to the productivity, independence and integration of people with developmental disabilities
- Employ multidisciplinary approaches to collect data and analyze them in order to provide objective analysis and evaluation relative to those issues
- Translate existing knowledge into effective proposals, leading to policies and programs that will enhance the well being of people with developmental disabilities
- Disseminate any new findings and proposals in a timely fashion.